Letters: Boost funding for those with Spina Bifida, time for flu vaccination

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Boost federal funding for devastating birth defect of Spina BifidaSpina Bifida stems from a hole in the spinal cord. Because the spinal column fails to close properly during development in the womb, it impacts virtually every major organ system.Children born with Spina Bifida typically undergo dozens of surgeries before they become adults. Adults living with Spina Bifida face physical health, mental health and other challenges, such as unemployment and limited access to quality primary and specialty care.There are currently an estimated 166,000 individuals in the United States living with Spina Bifida, approximately 65 percent are adults. This disease is now witnessing its first generation of adults, an incredible milestone.In recent years, the Spina Bifida community has seen a growing incidence of sudden death in its over-25 population. We must explore and gain an understanding of this sudden death phenomenon so we can reverse this troubling trend. Moreover, we must expand investment in research to address other issues related to Spina Bifida and associated secondary and co-morbid conditions.There is some encouraging news. The Spina Bifida patient registry, created in 2003 by the Centers for Disease Control and Prevention through the National Spina Bifida Program, established by Congress, is now starting …

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